Website of the organizer -

28.08 - 29.08 / 2020

VIII weekend
with SMA

Free access – registration not required

Live broadcast

Ladies and Gentlemen!

The conference is free and requires no registration.
This is where the broadcast will appear.

The broadcast will be available 20 minutes before the scheduled start of the event.


We invite you to familiarize yourself with the details of the program.

10:20 - 12:40
Broadcast from the Polish Press Agency
10:20 - 10:55
10:55 - 11:00
Short Film by SMA Foundation Poland
11:00 - 12:40
„The Standard of Care in Spinal Muscular Atrophy vs Patient Needs in Poland”. Panel discussion. „SMA – new perspective of life”. Film premiere
12:40 - 12:50
„Adult living with SMA – Łukasz Kufta”. Reportage
12:50 - 13:00
Memories of the 2019 Weekend with SMA. Video.
13:00 - 14:50
Session 1
13:00 - 13:10
Session Start
13:10 - 13:40
What’s New in Science?

Anna Kordala, M.A., Department of Physiology, Anatomy and Genetics, University of Oxford

13:40 - 14:10
Respiratory Therapy in Emergencies

Prof. Dr Andrew Bush, Professor of Paediatrics and Paediatric Respirology, National Heart and Lung Institute, and Consultant Paediatric Chest Physician, Royal Brompton Harefield NHS Foundation Trust

14:10 - 14:40
Clinical tools to aid the nutritional evaluation of SMA Type 1

Dr Ramona de Amicis, International Center for the Assessment of Nutritional Status, Department of Food, Enviromental and Nutritional Sciences, University of Milan
Andrea Foppiani, Department of Food Enviromental and Nutritional Sciences, University of Milan,

14:40 - 14:50
10:00 - 11:40
Session 2
10:00 - 10:10
10:10 - 10:40
Standards Based Orthopaedic Care

dr Tomasz Potaczek, University Hospital of Orthopaedics and Rehabilitation in Zakopane

10:40 - 11:10
Is There a Link between Scoliosis and Hip Mobility in People with SMA?

dr Agnieszka Stępień, President, Stowarzyszenie Fizjoterapia Polska, Lecturer, Department of Rehabilitation, University of Physical Education in Warsaw

11:10 - 11:40
Scoliosis in the Era of SMA Treatments

dr Albert Fujak, Klinika Ortopedyczna Uniwersytetu Erlangen-Nuerenberg, Malteser Waldkrankenhaus St. Marien GmbH

11:40 - 11:50
Construction, Conservation and Adaptation of a Wheelchair

Emil Stefaniak, Active Rehabilitation Instructor, Foundation for Active Rehabilitation
Dawid Feder, Active Rehabilitation Instructor, Foundation for Active

11:50 - 12:00
„Adult with SMA: Angelika Chrapkiewicz-Gądek”. Reportage.
12:00 - 14:10
Session 3
12:00 - 12:10
12:10 - 12:40
The Standard of Care in Anaesthesiology

dr Zbigniew Szkulmowski, kierownik Ośrodka Wentylacji Domowej w Bydgoszczy, przewodniczący Sekcji Wentylacji domowej w Polskim Towarzystwie Anestezjologii i Intensywnej Terapii

12:40 - 13:10
Non-invasive Ventilation in Rehabilitation

dr Anna Pyszora, Katedra Opieki Paliatywnej Collegium Medicum, Uniwersytet Mikołaja Kopernika w Toruniu

13:10 - 13:25
Including a SMA Patient in Non-invasive Ventilation Programme

mgr inż. Paweł Jędrzejewski, kierownik krajowy ds. Organizacji Medycznej Pallmed

13:25 - 13:40
Premiera nowego koflatora Nippy 2 Breas

Kamil Oracz, Przemysław Wojciechowski - Medseven

13:40 - 14:10
Cough Assist and Its Use

Ivana Sundov, Bjeska

14:10 - 14:20
„Adult with SMA: Agata Roczniak”. Reportage
14:20 - 16:30
Session 4
14:20 - 14:30
14:30 - 15:00
Immunisation in SMA

lek. med. Renata Laudan, paediatrician

15:00 - 15:30
Childbirth School for Women with SMA

Adam Komar, President, Fundacja Potrafię Pomóc, Founder, Wrocław Childbirth School for People with Disability

15:30 - 16:00
Disability Recognition and Benefits for Disabled People and Their Carers

Ewa Szymczuk, Social Adviser, Centrum Integracja, Warsaw

16:00 - 16:30
Travelling in Poland Without Barriers

Monika Sztajerowska, founder of the website „Wakacje bez barier” (Holidays without barriers), Author of Wakacje bez barier (Holidays without barriers)

16:30 - 16:40

Files for download

Programme 8th WEEKEND WITH SMA